Saturday, August 18, 2012

What does my functional MD what to about the yeast?

My functional MD, that did the IG test, for Max sent me a list of supplements and prescribed two yeast killers. One of the yeast killers is Nystatin, the other is Diflucan. Honestly my gut says this isn't the way. I paid my homeopath for a consultation on this matter, since I felt that this was a band-aid approach. The GAPS diet book has been sitting on my nightstand for 6 months, it's intimidating and hard to read. After his protocol was given to me I knew that avoiding this diet was in vain. My homeopath is very well versed in GAPS, and she was a big support in helping me stay strong in the fact that yeast and low good bacteria is his biggest issues on the test. Food can fix and change this issue. It's like friendship bread, if it's not feed sugar and carbs it dies. That simple. The diflucan has been stated as being dangerous by my chiro family member and my homeopath. A dog died on it and a friend of my chiro had a heart attach on it. Why should this be administered instead of fermented foods, no complex sugars and lots of broth to heal the gut? One of the best tips from my homeopath is that you can buy grass fed gelatin that is tasteless and easy to mix into any food or drink. Not that homemade broth wont continue to be made and drank, but this will help get lots into him fast. Vitamin A & D are required to make all this happen per homeopath and chiro. The only supplement that I ordered by DR order is a digestive enzyme. I spent my money on Pickl-it jars, yogurt starter and gelatin instead of tons of supplements. I hope to change our food habits for lifelong maintenance. Dr's are people too, they are on a path just like the rest of us. Between all three; chiro, homeopath, and DR, I can find a balance that feels right to me and our family.

Sunday, August 12, 2012

Making progress

Max has drank several cups of broth this weekend! I never thought I would get enough in him hiding it and I'm so relieved he will just drink it.

Friday, August 10, 2012

Weak and sick again

Max just came off the bus with flushed skin, low temp and weak. The other kids are going to the pool, he's asleep on the couch. I feel so bad he doesn't have the stamina he should as a young child.

sick again

I picked max up early from school to go to his Occupational therapy visit. He seemed fine. He feel asleep in the car on a way to a quick errand before OT. When I stopped and he woke up he seemed feverish, had read ears and didn't want to talk. I carried him into store, he sat on the floor looking pitiful. I paid and headed to OT thinking that maybe he just need a little recharge. He laid on the bench at OT and we ended up just talking to his therapist and skipped the session since he still felt warm and was obviously not feeling well. He didn't want a drink or food. After checking his backpack, he didn't eat lunch. He was asleep by 5. This am he woke feeling fine. He needs to grow and gain strength. I heated a cup of broth today and drank it, if I'm going to have him do it, I wanted to know what it was like. Not bad. I feel I little more determined and less unsure if I can ever get him to consume enough broth to do the intro.

Wednesday, August 8, 2012

Need to make bread and figure out what to do with the chicken from the stock

Way more planning involved then I would like to make use of all this expensive food that I'm now trying to make and use. Max needs lunch items for school so bread needs to be made. Only one company makes starch free bread and the store is out till Friday. When I made stock I have chicken that needs to be used. I'm thinking chicken salad, but that requires me making mayo. My mayo making in the past didn't go so well. Sigh. Also have a ton of bookkeeping to do and need to check on my out yards.

and Chloe?

Chloe is a vegetarian carb eater. No meat and little fruit or veggies. She has gained quite a bit of unhealthy weight and it's effecting her life in every way. Headaches, tired, lower grades then she is capable of, ect... Even though I know she will completely bock at a GAPS meat filled diet, I told her that if she doesn't eat breakfast and lunch she will not get any help from us to buy a car. It's her main focus right now. If you wont help your self, I won't help you either. Also, I plan on seeking lots of broth into foods she would never expect. HA! Everybody in this house has health issues that can be solved by diet. It's my goal and focus to make this a top priority.

working our way backwards

Many people who do the GAPS diet don't start with the intro. Personally, since I'm a rip the band aid off type person, I think it's the way to go, but our family has already made plans to spend 5 days at Disney world in Sept and I'm not into telling my son NO the whole time about foods. He is used to gluten free already, so that won't be too bad, I don't think. Disney is very keen on sugary filled gluten, but seems to be on the bandwagon with gluten free alternatives. At home, till we go, we will be doing the full gaps diet as best as I can and as practice for when we go all the way. This means no starch. So all those gluten free subs are not being replaced as they are consumed. Making almond/coconut flour bread today for lunches, Udi's gluten free has lots of starch. Last night at dinner he was made to eat what was offered, we went to the burnt fork for some free range goodness. No banana instead or screwing off till past bedtime then wanting crap food. Both of my kids avoid dinner then get there crap after were done and tired. It's a system that worked well for them till yesterday. Max came down and was hungry, he was told to eat more dinner next time and was sent back to bed. This is hard to do. He has only gained 2lbs in about 2 years. I hate not to feed him, but this is what needs to happen to stop the craziness.

Tuesday, August 7, 2012

more layers to the issue

Knowing there was more layers to this issue, the Dr wanted to do a complete GI test. It showed that he had almost no good bacteria, and very high yeast. Not sure how the boy has almost no good bacteria after me giving him at least one quality probiotic everyday to make sure he would poop everyday. One of his sensory issues is holding poop. He just flat out didn't want to do it. He could even tell you eating makes poop and drinking makes pee. The Dr wants to put him on 8 weeks of nayastat oral and 2 weeks of another yeast killer, and a diff pro-biotic, pre-biotic, enzyme and food supplements. To me this seems like a temporary fix with lots of die off pain. My gut says that he gaps diet is the key to a long term fix. I think we will do the dr recommended treatment, but will only do so with the addition of changing the conditions that cause leaky gut.

where to go from here?

Where does this leave me with relationship with my family? Not so well, my husband was in denial and his mother was even worse. I will fight for my child no matter the damage to relationships with other family members or even friends. I have lost some of both. When does this start to get better? When we took him to see our functional MD for his behavioral issues and he was exhausted, but couldn't sleep. She suggested we go off gluten, and what happened next was amazing. It was a Friday, we went straight from the dr office to the gluten free health food store, and purchased all the things he loved, but in gluten free form. Moday he woke up late and I noticed some moisture in his ears, the moisture quickly turned to pouring fluid to green slime. Both of his ear drums ruptured. I know this sounds bad, but it was such a blessing. All of that gunk that had built up in his ears drained, and left him able to heal. Not another ear infection since. That was June 6th, 2011. Behaviorally, being gluten free helps lots, but there was more layers to peel away. Next was the breakdown I had after going to the beach with him and friends. He didn't sleep the whole time. I shit you not, the whole time. He stared at the shadow in the room as said it was watching him. Let me back up for a second here. Max has, since about 18 months old, talked to dead people or asked us if we saw the 'people in the room'. He never asked us if we saw live people so he was putting it together that he we seeing spirits. Anyways, after a week of no sleep I had a breakdown and went to see the Dr. Told her of my experience with him not sleeping the whole time,ect... She suggested that I talk to her nurse who had great luck recovering her son. Vitamin B is crucial, she told me. Her son got vit b shots daily. Once again I ran to the health food store and purchased a strong vit b supplement. Within days he started to make eye contact, say hi to people when then they talked to him and could tell me more about what was going on instead of being so frustrated ALL the time. BTW, she also gave me a prescription for celexa and is was very helpful at the time. We enrolled him in the public school system since the hippy school obviously didn't have enough structure to keep him feeling safe. The structure of the public school was wonderful for him. He stopped having accidents at school and home towards the middle of the school year. I would just like to say here, that the school didn't want to help me, the screened him and said he was just a little quirky, but fine. We had to threaten to sue them to get services. Fight for your child. The other approach we took was Occupational Therapy at Children's Healthcare of Atlanta. His fine motor skills were lacking, he was showing sensory issues and processing issues. Not sure how much OT helped, this is our last month, but glad we did it none the less. One of the things we did because of OT was get a therapeutic listening system. I think it does help, but I didn't get drastic results. It was $400.00

Missed signs

My son has signs that I just didn't catch. (Mother's guilt I tell you.) He was home birthed, non-vaxed, non- circumcised, but really the issues started before birth. The day I became pregnant, I got stopped sleeping, got restless leg and sever panic attacks. I had really put my body through the paces. I was the hub of a very busy restaurant and the problems and hard core physical work never stopped. My body was depleted when I conceived. Still, I thought all would be fine. I quite my job, ate good foods (so I thought) took all my supplements and visited my chiro, and midwife regularly. Max didn't pass his meconium by day three, and I gave him an enema. That did the trick, but I missed this que of intestinal weakness. Next sign was wicked excema on one of Max's arms. My diet was effecting him after birth and I didn't know it. I also had adrenal fatigue and didn't know it. I was pumping lots of epinephrine into him. No wonder either of us slept. It was two long years of us being completely sleep deprived till he weaned at 8mos. Then he slept, I didn't. So that is when I had the lab work, that came back with adrenal fatigue. Max had ear infection after ear infection. Most of the time we just waited it out for the 10 day period of him getting over it. Some were so severe we did give the antibiotics. My son was showing signs to me that things weren't normal in his world. He would never partake in activities like other children, he was always trying to escape. What was he looking for, not sure, but he was never content, ever. I found out that he was starting to do some rocking at his hippy preschool. I asked for a evaluation. He showed having processing of language issues. That was really just the tip of the ice burg though. Max was past his 5th birthday before I wanst a nervous wreck that he wouldn't soil himself in public. Even just Sat he got in trouble and was sent to room to gather himself, and he peed on himself in response.